Patient Resources
At PCARES (Pediatric Care for Autonomic Research, Education, and Solutions), we know that living with dysautonomia—especially at a young age—comes with unique challenges. Whether you’re newly diagnosed, a parent or caregiver, or navigating life with complex autonomic conditions, this page is your personalized hub for trustworthy information, tools, and support to help you thrive.
What is Dysautonomia?
Dysautonomia is a group of conditions where the autonomic nervous system (ANS)—which controls things like heart rate, blood pressure, digestion, and temperature regulation—doesn’t work properly. It’s not rare, just rarely diagnosed.
Many of the patients we serve at PCARES are affected by conditions such as:
Postural Orthostatic Tachycardia Syndrome (POTS)
Neurocardiogenic Syncope (NCS)
Orthostatic Hypotension
Mast Cell Activation Syndrome (MCAS)
Ehlers-Danlos Syndrome (EDS)
MALS, SMAS, Nutcracker Syndrome, and more
Learn more from our trusted sources:
Dysautonomia International
The Dysautonomia Project
At PCARES, we see your strength. We believe in your story. And we’re here to walk beside you as you navigate this journey. Whether you’re newly diagnosed or years into your condition, you are part of a community that cares deeply and fights daily for better answers, access, and support.
Let’s keep learning, advocating, and living—together.
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